The Stoma Bags Wearer (@of_disability) 's Twitter Profile
The Stoma Bags Wearer

@of_disability

In 2016 I suffered a ruptured Abdominal Aortic Aneurysm. ICU lived experience, ICU delerium, chronic pain and many complications.

ID: 1169319072309420033

calendar_today04-09-2019 18:39:39

1,1K Tweet

715 Followers

413 Following

Niall Harbison (@niallharbison) 's Twitter Profile Photo

I’ve just had 8 days of the worst depression and anxiety imaginable. Horrendous. Today it has finaly lifted. I wanted to share a thread to help people who suffer but also non sufferers to grasp what it is. This is what depression feels like for me... (1/12) 🧵

I’ve just had 8 days of the worst depression and anxiety imaginable. Horrendous. 

Today it has finaly lifted. I wanted to share a thread to help people who suffer but also non sufferers to grasp what it is. 

This is what depression feels like for me... (1/12) 🧵
Leo (@leoie) 's Twitter Profile Photo

Dublin Hotels are cancelling pre confirmed bookings for rooms that clash with the Oasis concerts announced today and reposting the rooms with a 3x markup! How the FUCK is this legal? Fine Gael Green Party Ireland Fianna Fáil Sinn Féin

The Stoma Bags Wearer (@of_disability) 's Twitter Profile Photo

I had a fabulous zoom meeting with a support group from ICU steps last night for people and family members who have been affected by being in Intensive Care. I would highly recommend checking out their website ICUsteps.org Just wish I'd have found it earlier.

The Stoma Bags Wearer (@of_disability) 's Twitter Profile Photo

I'm in the midst of a particularly bad pain flare up atm. I'm trying to remain upbeat and positive, but it's draining the good out of me. Have a CT scan and pain management doctor tomorrow.

ICUsteps Dublin (@icustepsd) 's Twitter Profile Photo

ICUsteps Dublin is now accessible all of Ireland! Join our friendly drop-in meeting on Wednesday, 25th September 2024 via ZOOM at 7.30pm from your own home. To gain access email [email protected] or see our website icusteps.ie for details

ICUsteps Dublin is now accessible all of Ireland! Join our friendly drop-in meeting on Wednesday, 25th September 2024 via ZOOM at 7.30pm from your own home. To gain access email information@icusteps.ie or see our website icusteps.ie for details
The Stoma Bags Wearer (@of_disability) 's Twitter Profile Photo

Pain flare up due to nerve damage caused by scaring that occurred during surgery when they were connecting my stomach muscles back together. Just got 8 botox injections into the stomach muscles and a cream to rub on it. Onwards and upwards 👊

The Stoma Bags Wearer (@of_disability) 's Twitter Profile Photo

Today, I've managed to do two loads of washing. Which compared to the last few days is quite a victory. #ChronicPain #CronicFatigue

Han 🖤 (@spoonfulofhan) 's Twitter Profile Photo

People don’t understand the fear that chronically ill people have of getting worse. It could happen at any point. We are always on our toes wondering which new symptom or which flare could be the turning point.

The Stoma Bags Wearer (@of_disability) 's Twitter Profile Photo

The anxiety of having to ring the doctors for my opioid pain relief prescription is off the chart. Should have got 28, only got prescribed 8. Have to go through it all again Monday. We should NOT have to feel this way to NOT be in pain. #ChronicPain #ChronicIllness

Tartan Cushion (@tartancushion) 's Twitter Profile Photo

The Stoma Bags Wearer I have this week in, week out. Last week in particular was epic….left me with none, had to get a handwritten script & then after hours pharmacy 🤬😞🤬 Chronic pain in patients with chronic long term illness is acutely misunderstood, esp by GPs IMO 🤐

The Stoma Bags Wearer (@of_disability) 's Twitter Profile Photo

So, after 2 weeks of one of the worst flare-ups I've had, I'm finally coming out of it, felt a bit better yesterday and even more so today. Energy coming back. Have a lovely weekend 👊

Doodle Chronicles (@doodlechronicle) 's Twitter Profile Photo

The Stoma Bags Wearer Please can you share? There's just 2 hours left on my crowdfunder to help me complete my nursing training. I'm a student nurse with IBD (Crohns), Gastroparesis, & Mental Illness. I can't get funding for one of my years due to my disabilities crowdfunder.co.uk/p/help-a-disab…

The Stoma Bags Wearer (@of_disability) 's Twitter Profile Photo

Having to jump through hoops again to get my pain killers. I have to speak to a doc who will decide if I can have more tablets. Look at my fu@&!ng history. I LIVE WITH CHRONIC PAIN FFS. When I don't need them I don't take them. When I do need them, I need them #ChronicPain