The public health minister Andrew Gwynne MP understands ME and says Maeve "fell through the cracks". Actually it's worse. She fell into a gaping hole in our healthcare system where there was no specialsit care for her illness. This was a systemic failure not the fault of one hospital.

Thank you Channel 4 News for another excellent quality interview on ME. How many more will you need to do until we see some positive change Krishnan Guru-Murthy? Karen Hargrave thank you so much for today. You are exactly what our community needs right now but please rest up!

"Forgotten faces of #ME 'harrowing' inquest agony & urgent call for change As #MaeveInquest concludes the Mirror looks at other cases of those whose lives have been ripped apart by this cruel & widely misunderstood disease" #pwME #MedTwitter mirror.co.uk/news/health/fo…

Proud - didn’t take much. Nasty little man.

#SaveKaren #MaeveInquest #MEcfs #MyalgicEncephalomyelitis #SevereME If you or someone you know have TPN at home, is contact Michael ASAP. Janet Dafoe I know Whitney Dafoe had TPN, maybe you know of others?

Please share this image far and wide. Let’s make @NHS see their true brand identity! #NHSmurdersMEpatients

Anyone else in Finchley & Golders Green with #myalgicencephalomyelitis? I’ve already written to Sarah asking her to help support pwME but it would have more of an impact if she heard from others. Please get in touch. #barnet #finchley #goldersgreen

INTERVIEW: Our co-founder Steve Topple spoke with Dr William Weir about the inquest into the death of Maeve Boothby O'Neill: his thoughts on it, her case, the similarities with #SaveCarlasLife, & what the future holds for #MEcfs. Please do watch & comment: youtube.com/watch?v=JME4ir…

This is a brilliant interview with a wonderful doctor who, @ 75yrs old, is trying (almost single-handedly) to save the lives of severe ME patients in the UK. What are ME Association and Action for M.E. doing to amplify Dr Weir’s voice? #myalgicencephalomyelitis #thereforME

I’m going to submit a question (or 2). I doubt it will make any difference but it is another way to make our thoughts known etc. #MyalgicEncephalomyelitis

For our #ThereForME supporters - a heads up that we’re hoping to have a segment going out on BBC Breakfast tomorrow. Expected to go out circa 7am - pre-record with me & Oonagh Cousins + Binita Kane live in the studio. We’ll let you know any scheduling changes!

Any chance of Wembley Stadium making access tickets accessible this time around?

One for Wembley Stadium

Lots of influential disabled people talking about how awful Wembley were yesterday, which is great. Reminder that lots of disabled people have been campaigning for accessible live music and ticketing for years!! (Inc me) they just don’t have high profiles.

Love this!

People with #severeME are dying at an astonishing rate - usually either from malnutrition or euthanasia/suicide - and yet some doctors still feel entitled to say stupid shit like, "I don't believe in ME." #MedTwitter #MyalgicEncephalomyelitis

We have posted an update on our petition Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings. Scroll down on our petition page to ‘updates’ to view it. chng.it/CGMQTDVvRb

To Andrew Gwynne MP Please show your genuine commitment to patients with #ME & #LongCovid & arrange to meet with #ThereForME & commit to a date for the publication of the Department of Health and Social Care delivery plan asap The situation for all #pwME remains critical & we need change urgently.