Rare Disease UK
@rarediseaseuk
National campaign run by @GeneticAll_UK to improve the lives of those affected by rare conditions and all who support them.
#RareDisease.
ID: 274030199
http://www.raredisease.org.uk/ 29-03-2011 15:57:09
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We are very happy to hear about a new project to develop a pathway for children with rare conditions to access individualised therapies. You can see Genomics England's announcement here: ow.ly/L6Pt50QaKmw Genomics England MHRAgovuk Oxford-Harrington Rare Disease Centre ABPI