Rachel
@rachelleese84
Londoner, wife, Mum, pwME (myalgic encephalomyelitis). Lover of wine 🍷.
ID: 360888483
23-08-2011 22:42:21
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The public health minister Andrew Gwynne MP understands ME and says Maeve "fell through the cracks". Actually it's worse. She fell into a gaping hole in our healthcare system where there was no specialsit care for her illness. This was a systemic failure not the fault of one hospital.
Thank you Channel 4 News for another excellent quality interview on ME. How many more will you need to do until we see some positive change Krishnan Guru-Murthy? Karen Hargrave thank you so much for today. You are exactly what our community needs right now but please rest up!
#SaveKaren #MaeveInquest #MEcfs #MyalgicEncephalomyelitis #SevereME If you or someone you know have TPN at home, is contact Michael ASAP. Janet Dafoe I know Whitney Dafoe had TPN, maybe you know of others?
INTERVIEW: Our co-founder Steve Topple spoke with Dr William Weir about the inquest into the death of Maeve Boothby O'Neill: his thoughts on it, her case, the similarities with #SaveCarlasLife, & what the future holds for #MEcfs. Please do watch & comment: youtube.com/watch?v=JME4ir…
This is a brilliant interview with a wonderful doctor who, @ 75yrs old, is trying (almost single-handedly) to save the lives of severe ME patients in the UK. What are ME Association and Action for M.E. doing to amplify Dr Weir’s voice? #myalgicencephalomyelitis #thereforME
For our #ThereForME supporters - a heads up that we’re hoping to have a segment going out on BBC Breakfast tomorrow. Expected to go out circa 7am - pre-record with me & Oonagh Cousins + Binita Kane live in the studio. We’ll let you know any scheduling changes!
Any chance of Wembley Stadium making access tickets accessible this time around?
To Andrew Gwynne MP Please show your genuine commitment to patients with #ME & #LongCovid & arrange to meet with #ThereForME & commit to a date for the publication of the Department of Health and Social Care delivery plan asap The situation for all #pwME remains critical & we need change urgently.