Alström Syndrome UK
@AS_UK
'Alström Syndrome is a rare genetic condition affecting every organ in the body. ASUK provides support & guidance for those affected.' Tweets by Catherine Lewis
24-02-2011 19:19:55
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If you have ever wondered about completing the Alström Syndrome Global Patient Registry - then check out this short film from Sanford Research explaining why it is so important for the rare community.
alstrom.org.uk/patient-regist…