Courageous Parents
@CourageousCPN
Courageous Parents Network is a non-profit organization that orients and empowers parents and others caring for children with serious illness. #Pedpc
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http://courageousparentsnetwork.org/ 12-05-2015 15:09:31
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Providers-Come learn about Child Neurology Foundation's Family Support Program & NeuroJourney.org, CPN's anticipatory guidance tool for families caring for children with #SNI . Both will enhance your practice!
Register: courageousparentsnetwork.org/events/come-le…
#SevereNeurologicalImpairment #Neurology
It is not uncommon for families of children with medical complexity to experience a shift in their circle of friends.
#MedicalComplexity
#RareDisease
#Caregivers
#SupportCircle
We are happy to have Chrissy Salley, PhD representing CPN at the annual Society of Pediatric Psychology conference!
#SPPAC2024 attendees! I am in front of 8 block bar if you are interested in stopping by and learning about Courageous Parents Network and our resources to help families. #thisispedpsych Courageous Parents
The Undiagnosed Diseases Network Foundation's (Undiagnosed Diseases Network Foundation (UDNF)) mission is to improve access to #diagnosis , #research , and #care for all individuals with #undiagnosed and #ultrarare conditions.
bit.ly/4aOlsjV
I love seeing Courageous Parents materials out in the wild! Thank you SPP Palliative Care and End of Life SIG for sharing.
Siblings sometimes struggle with how to talk with friends about their #MedicallyComplex brother or sister.
#RareSiblings
#SiblingSupport
#Siblings
We’re excited to partner with Child Neurology Foundation to conduct a survey thru 5/3 to understand the journey of caring for children with #NeurologicConditions . bit.ly/3TZg0n4
#ChildNeurology #CNF
#Caregivers of #MedicallyComplex children need their friends to recognize how unpredictable their world is and be patient when plans change.
#MedicallyComplex Parenting
#mitochondrialdisease
It is #NationalSiblingDay . The diagnosis of a brother or sister will be a defining moment in the life of a #sibling . In her first piece as Blogger in Residence, Molly's words truly capture the sibling experience.
Read: bit.ly/3vOuy0G
#RareSiblings
#Cancer
Discover the power of children's #books to help young people understand #death and #loss . REGISTER: bit.ly/3J6nz6p
#teachers
#libraries
#caregivers
#pedpc
#parenting
#grief
#bereavement
Studies have shown that even very young children who are #seriouslyill think about death—even if no one is talking about it. If a child is cognitively capable of talking about their own wishes, it can be a gift to all to have these conversations together.
bit.ly/3TXxbGF
Children’s literature can offer a gentle and developmentally appropriate way to address complex topics – such as #death and #grief – with children. Join us In The Room on April 11th.
Register: bit.ly/3J1QB6S
#Pedpc #RareDisease #Caregiver #MedicallyComplex
Caregivers of children with serious medical conditions uniquely understand living in the present.
#Trisomy18
#TrisomyAwarenessMonth
#Pedpc
#Trisomy21
#trisomy13
#CompatibleWithLife
Join us In the Room tonight at 8 pm ET for a conversation about work, in or out of the home, while caregiving. REGISTER: bit.ly/3v25kM1
#parentcaregiver
#caregiver
Join us for a discussion with Myra Sack, author of Fifty-Seven Fridays: Losing Our Daughter, Finding Our Way. This memoir honors Myra’s daughter Havi and chronicles their journey helping her live and die.
bit.ly/3TnBBoN
#Ritual #Diagnosis #Grief #PalliativeCare