The #DSL toolkit 2.0 is today being presented by ildikó vajda, Senior Advisor in Digital Care,
Patiëntenfederatie as part of the #AI in #Healthcare 101. Find the toolkit (now also in Dutch!) here: bitly.ws/36MTz

Today marks a milestone for DataSavesLives as we bring the initiative to the national level in Austria. DSL toolkit aims to equip patient groups and health influencers with the information and materials they need to have a positive dialogue with their communities

Amazing experience to see #datasaveslives training go local in Austria! This time, thanks to imi_H2O! Ingrid on stage in German🫶🏽

Happy holidays from #DataSavesLives , a big thank you to everyone who has helped to promote the benefits of #HealthData sharing to improve the lives of patients across Europe. We'll be back in 2024 with a range of exciting activities to continue the conversation, stay tuned!

Your health data, your control 💪🔬An Innovative Health Initiative funded #H2O project has introduced a game-changing #PatientAgreement , giving citizens the power to measure their own health outcomes and control how their data is used for research. Curious to find out more? rb.gy/d63s34

.OECD ➡️ Better Policies for Better Lives Health at a Glance 2023 report reveals digitalisation of health systems can significantly improve performance and outcomes. In line with #DataGovernance , this report provides a policy checklist for stronger digital health systems: bit.ly/40xV8WQ #DataSavesLives

Confused about #FAIRifiedData and #FederatedData ? 😕 Don't worry, we've got you covered! Our #DataSavesLives toolkit simplifies the world of #AI , making it easy for you to empower your community. Explore it now: bit.ly/3G6SAW9 🚀🤝

Employee wellbeing has never been more discussed, but what data lies behind company health programmes and strategies? This Harvard Business Review article reviews 4 phases of a workforce health and #wellbeing framework and highlights why data is key: bit.ly/47uJCO9 #DataSavesLives

How can we capture data points affordably and accessibly to advance biomedical knowledge? Scripps News reports on Stanford Orthopaedics engineers new motion-capture app that makes it possible to see muscle and skeletal movement with just a phone: bit.ly/3QWuvYz #DataSavesLives

#DYK that #DataSavesLivesGermany #DSLDE is here to support German patient groups to have better conversations about #HealthData ? Follow Data Saves Lives Deutschland to keep up to date with the current trends and conversations happening in the region

Wrapping up our last DataSavesLives
Ambassador Bootcamp of the year with European Patients' Forum and EHDEN! ✅The joy of uniting passionate patient reps and expert trainers to delve into establishing a patient registry shines through here.👏 #DataSavesLives

.News Medical shines a spotlight on a coalition led by Bielefeld University and Uppsala University to improve migrant and refugee #HealthData in Europe. A study in The Lancet Reg Health-Europe reveals the political and structural barriers to better data: bit.ly/49IXzKq #DataSavesLives

That's a wrap! Over the past 1.5 days we have had the pleasure of facilitating discussion with #PatientAdvocates about building community-led patient registries. A huge thanks to our event partner EHDEN and expert trainers for sharing their knowledge and expertise!

We are back with another bootcamp 🧑‍💼

#RWE and #patientregistries are gaining a momentum as tools to inform regulatory and HTA decision making. DataSavesLives and EHDEN host a much needed bootcamp event for patient organisations.

📅 Today, DataSavesLives, in collaboration with EHDEN, will host the Patient Registries Bootcamp!

We will be there, discussing the importance of health data with healthcare experts

📢Follow us for updates!

#DataSavesLives

Delighted to be hosting our next #Bootcamp event with EHDEN over the next few days! We can't wait to meet our #PatientOrganisation ambassadors for 2 days of learning, collaboration, and FUN as we explore how to build community-governed #PatientRegistries . Stay tuned!

The European Cancer Imaging Initiative is pushing innovation in collaboration and data sharing across Europe to improve #CancerDiagnostics . #EUCAIM share their latest resources, including the early release of the Data Federation Framework: bit.ly/49wx0I2 #DataSavesLives