Lupus Europe
@LupusEurope
Lupus Europe is the umbrella association of currently 31 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.
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http://www.lupus-europe.org 19-03-2011 13:53:11
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🦋 Living with #Lupus often means navigating treatments like steroids
💊 Share your experiences and the effects of steroid use
🗣️ How have they impacted your journey? #Lupus Warriors #PatientVoices
forms.gle/QajmuT7AtTZw1Y…
Lupus Europe LUPUSUK 💙 Cristiana Sieiro Santos Kunal Chandwar
The 13th Annual Meeting of the Lupus Academy will be held 6–8 September 2024 as a hybrid meeting
Remember to submit your poster abstracts and Thieve's Market cases by Friday 31 May! For more information head to lupus.academy
#SLE #lupus #autoimmune #rheumtwitter #MedEd
Our Chair, Jeanette Andersen, participated in #ERA24 KDIGO 2024 Guideline on Lupus Nephritis session, where she also brought🔝insights by sharing her personal SLE journey.
Thanks, ERA - European Renal Association for this opportunity & for recognizing 🔝role of patient voices linkedin.com/posts/lupus-eu…
🦋 Are you a #Lupus #patient ?
How do you feel about #steroids ? 💊
Take Part in our LUPPOS survey and share your experience 📊 in 5 minutes⏱️
👉 Links in English French Italian Spanish Portuguese Arabic Hindi Marathi Gujarati available in comments
Lupus Europe Gruppo LES Italia
🦋Participate in the #LUPPOS Survey!
📊This study by Cristiana Sieiro Santos Sarah Dyball elisabetta chessa Kunal Chandwar & Alvaro Gomez aims to identify the habits and attitudes towards the use, management & withdrawal of glucocorticoids among those living with #SLE .
🔗 Links below!👇
✅ Is the future incorporating #digital healthcare in the #diagnosis , #treatment & followup of patients with #autoimmune diseases such as #Lupus ? Come listen to the latest updates if you are at #autoimmunity2024 in Ljubljana... Otherwise we have this link:doi.org/10.1016/j.autr…
✅ This slide for #Autoimmunity2024 summarizes many of the DISRUPTION POINTS 🚧 that were found while mapping #PATIENT PATHWAYS in #LUPUS . What is positive is that many of these UNMET NEEDS can be easily improved or corrected 👍 Autoimmunity Network full link: lupus.bmj.com/content/lupuss…
📢CALLING all patients with Lupus 🦋
🗣️Your voice matters!
👉 Participate in our LUPPOS survey to help us better understand your attitudes towards steroids used in SLE treatment
⬇️Links available in comments
Lupus Europe Federación Española Lupus | #FELUPUS Asociación de #Lupus de Madrid Laurent ARNAUD Donald Thomas, MD