🦋 Living with #Lupus often means navigating treatments like steroids

💊 Share your experiences and the effects of steroid use

🗣️ How have they impacted your journey? #Lupus Warriors #PatientVoices

forms.gle/QajmuT7AtTZw1Y…

Lupus Europe LUPUSUK 💙 Cristiana Sieiro Santos Kunal Chandwar

The 13th Annual Meeting of the Lupus Academy will be held 6–8 September 2024 as a hybrid meeting

Remember to submit your poster abstracts and Thieve's Market cases by Friday 31 May! For more information head to lupus.academy
#SLE #lupus #autoimmune #rheumtwitter #MedEd

✅ Happy to report that we are moving forward ⏩ to STEP4 of the #SLICC - @ERN_RECONNET - SLEuro recommendations for RARE #LUPUS MANIFESTATIONS. The international panel of experts will now pick the best treatment strategies 🏆 among those that have been submitted 👍

✅ SAVE THE DATE ⏰
At #EULAR2024 Vienna, I will give a EULAR invited lecture (👀12th of June Hall D at 15:15) about WHAT IS ON THE HORIZON for #LUPUS ?
I will my best to present an exciting review of the latest concepts and evolutions in the field of #SLE . Meet me there!!!

Our Chair, Jeanette Andersen, participated in #ERA24 KDIGO 2024 Guideline on Lupus Nephritis session, where she also brought🔝insights by sharing her personal SLE journey.

Thanks, ERA - European Renal Association for this opportunity & for recognizing 🔝role of patient voices linkedin.com/posts/lupus-eu…

✅ Thank you Section REF for the invitation to talk about the pathogenesis of #Lupus at the #JFR2024 of Lille 👍
My highlights:
- genetic + hormones + environmental factors
- genetic risk score for #SLE
- monogenic vs polygenic
- Immunology ⬇️
Link:doi.org/10.1016/j.jbsp…

✅ Pathophysiology of Systemic #Lupus ⬇️ at #JFR2024 🦋
#Lupus awarenessmonth

✅ For the Portuguese #NEDAI 2024, I've been asked to prepare 'a (clinical) Year in review' ➡️ I'm curious to know what is your 'MUST READ' selection for 2023-2024? not #Lupus but other #autoimmune diseases? For clinic care not basic/translational science?

I’m honoured to have been invited to speak at the 61st Annual #ERA24 Congress. What a great session “Managing Lupus Nephritis in 2024: highlights from the latest KDIGO guidelines“ with an interesting panel discussion!

🦋 Are you a #Lupus #patient ?
How do you feel about #steroids ? 💊

Take Part in our LUPPOS survey and share your experience 📊 in 5 minutes⏱️

👉 Links in English French Italian Spanish Portuguese Arabic Hindi Marathi Gujarati available in comments

Lupus Europe Gruppo LES Italia

🦋Participate in the #LUPPOS Survey!

📊This study by Cristiana Sieiro Santos Sarah Dyball elisabetta chessa Kunal Chandwar & Alvaro Gomez aims to identify the habits and attitudes towards the use, management & withdrawal of glucocorticoids among those living with #SLE .

🔗 Links below!👇

✅ Is the future incorporating #digital healthcare in the #diagnosis , #treatment & followup of patients with #autoimmune diseases such as #Lupus ? Come listen to the latest updates if you are at #autoimmunity2024 in Ljubljana... Otherwise we have this link:doi.org/10.1016/j.autr…

✅ Check our recent #recommendations for physical #activity and #Lupus (Pocket format) ⬇️ The 3 overarching principles and the 15 statements are summarized in one slide 👍 If you wish to download the full paper (for free) just click here: rmdopen.bmj.com/content/rmdope…

UCL is studying how Muslim patients with autoimmune rheumatic diseases, including #lupus , manage medications during #Ramadan . Please take this quick 10-min survey & share it in your networks. Your help is key! 🌍🙏

🔗 qualtrics.ucl.ac.uk/jfe/form/SV_23…

✅ This slide for #Autoimmunity2024 summarizes many of the DISRUPTION POINTS 🚧 that were found while mapping #PATIENT PATHWAYS in #LUPUS . What is positive is that many of these UNMET NEEDS can be easily improved or corrected 👍 Autoimmunity Network full link: lupus.bmj.com/content/lupuss…

📢CALLING all patients with Lupus 🦋

🗣️Your voice matters!

👉 Participate in our LUPPOS survey to help us better understand your attitudes towards steroids used in SLE treatment

⬇️Links available in comments

Lupus Europe Federación Española Lupus | #FELUPUS Asociación de #Lupus de Madrid Laurent ARNAUD Donald Thomas, MD

✅ Now a related question for NON-SEVERE #Lupus manifestations. Let's say #pericarditis . Do you typically do an mPred infusion in that case? If so how much?
NB: X offers only 4 choices so please don't vote if you're not a doctor 🙏 I will show the results tomorrow anyway.

✅ Management of REFRACTORY #LUPUS ⬇️
#Lupusawareness month