#Compassionomics Daily: Rigorous research shows that physicians miss 60-90% of opportunities to show #compassion to patients, and nearly 50% of patients believe that the U.S. health care system (and its clinicians) are not compassionate. #CompassionCrisis Compassionomics.com

Only 6% of poor countries have oral morphine available in more than half their pharmacies, compared with two-thirds of industrialized countries,... reuters.com/article/us-hea…

“You will not be alone. You will not feel pain. We will be okay.” - powerful...

“Naming for parents that they are doing a good job is so important. Parents don’t know it, and don’t know they need to hear it. Connect with them human to human. Tell them they are courageous!” Blyth Taylor Lord Courageous Parents

“Clinicians can learn how to be “unconditionally present” for patients and families without immersing themselves in anguish and, eventually, how to help the family find freedom from despair and a full life that still honors the child’s memory.”

Here’s a palliative care PSA I made. Feel free to share with your colleagues to spread the word. #hpm #pedpc #MedEd #watersupportteam youtu.be/BbNi_-wYXJE via YouTube

“Take it from people who have been there: you don’t have to know what to say - just be present and say something. Avoid trying to rationalize...and avoid making grand, sweeping statements that try to explain what’s happening.” The Upset Book - Tyler Trent tylertrentbook.com

The strength of these families in the midst of such extreme sadness is truly breathtaking...

In meetings "physicians spoke an average of 83.9%, non-physicians 9.9%" Interprofessional Team Member Communication Patterns, Teamwork, & Collaboration in Pre-Family Meeting Huddles in a Peds Cardiac Intensive Care Unit in Journal of Pain and Symptom Management (JPSM) ncbi.nlm.nih.gov/pubmed/31004773 #pedpc

I took a break from playing cards and donated to Purdue Nursing! Join me in #PurdueDayofGiving! dayofgiving.purdue.edu. #IGave

WHEN TO REFER TO HOSPICE?! I used to worry I was referring too early. Now that I've been out of residency nearly 2 years, I can confirm I have NEVER made the referral too early. Take away: if you are thinking hospice, probably a good time to offer referral. #geriatrician #HPM

“The outcome that terrified me the most was not that River would suffer, but that she would never feel the redeeming joy that makes suffering tolerable.” - A Birth Plan for Dying longreads.com/2018/09/28/a-b…

Primary pediatric palliative care improves quality of life care for children & their families. Integrating the Comfort Theory into #pedpc empowered clinicians in caring for patients, providing support to clinical staff, and in developing best practices. ow.ly/ShUQ50ubCi7

Why do people tell nurses “You’re so smart! You should have been a doctor!” as though nursing doesn’t also require intelligence? Would someone tell a doctor “You’re so caring! You should have been a nurse!”? The best doctors & the best nurses are both.

All That This Hand May Hold: Phenomenological Exploration into the Meaning of Pediatric Legacy Prints in Journal of Pain and Symptom Management (JPSM) ncbi.nlm.nih.gov/pubmed/31200014 #pedpc #pedspc #hpm

This qualitative study examined parental experiences when caring for a child receiving #pedpc. Prominent experiences were: continuous management of anxiety, feelings of uncertainty, tension with end-of-life decision making & engagement with professionals. ow.ly/hQvI50uWZOx

A new group of Pediatric ELNEC trainers are being treated by Gay Walker’s stories, such a blessing. #ELNEC

Please cosponsor #PCHETA S. 693 Senator Todd Young to improve the quality of life of patients with serious illness. It will lead to reduced pain and suffering. PatientQoL Coalition, the bill’s 50 supporting orgs, and Indiana residents will thank you!

When will we stop calling it “Withdrawing Care”? Found this in a pediatric oncology book published in 2020...we never stop caring.