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📰 Highlights from the ERN ReCONNET 🇪🇺 💡IRDiRC‘s Special Edition on #NewbornScreening (#NBS) – Real World Applications n Technologies 🟡This journal has an #openaccess policy, the eBook is available for consultation for free 🔗 bit.ly/4fUp6M5

🎓 the🆕ERN ReCONNET 🇪🇺 webinar season 2024-2025 is coming🆙 ✍️Registrations are open! ℹ️ of ALL #ErnReCONNET webinars n Registration links bit.ly/3DxXDhi 🖥️ #DYK that ALL our webinars are freely available? ▶️ #YouTubeChannel Webinar Playlist bit.ly/3saCUOg

⚫️ EURORDIS-Rare Diseases Europe Black Pearl Awards 2025 nominations will close today, so don't miss this incredible opportunity to nominate your star ⭐️ of the #raredisease community or enter yourself! 🔗 bit.ly/4cNzG4L

⭐️ ERN ReCONNET 🇪🇺 elected its🆕 #EhlersDanlosSyndromes n #SjögrensSyndrome Disease Coordinators: Dr. Castori IRCCS Casa Sollievo della Sofferenza (#Italy) n Prof. Nocturne APHP-Hopital Bicetre, Paris Saclay University (#France) 👏Congrats! 🔗News n video messages (EN, IT, FR) bit.ly/479ICQr

⭐️ERN ReCONNET 🇪🇺 welcomes its new #ePAG Advocates that will greatly contribute to our Network! -Olga Drapalova (Czech Republic) n Silke Schlüter -(Germany) ➡️IIMs -Magdalena Ciupera (Poland)➡️MCTD -Camelia Bucsa (Romania)➡️RP 👏Congrats! 🔗Link to the news bit.ly/3AWdHeo

🆕ERN ReCONNET 🇪🇺 #webinar season 2⃣0⃣2⃣4⃣-2⃣0⃣2⃣5⃣ is coming up! 💡Topic: #AntiPhospholipidSyndrome 🎯Target audience: #patients #caregivers n family members 👥with Dr Massimo Radin - Dr Foddai n Prof Savino Sciascia 🗓️Sept. 11th - 4pm ✍️Registration is🆓bit.ly/4dF5UjC

📢 #DKY that ERN ReCONNET 🇪🇺 will be at the American College of Rheumatology 2⃣0⃣2⃣4⃣???? 🙌 Yeah, the Coordination Team will be at Booth n.2⃣1⃣0⃣1⃣ 🗓️#SaveTheDate: Nov. 14th-19th 📍Walter E. Washington Convention Center in Washington, D.C. 🇺🇸 🔗 bit.ly/4cU0hNt

💥 The 🆕 ERN ReCONNET 🇪🇺 flyer on #NailfoldVideoCapillaroscopy is finally out!!! 🔍Check out this important resource n download for 🆓the pdf! 🙏 Thank you Prof. Cutolo Ospedale San Martino Genova, Prof. Smith UZ Gent n Prof. Ingegnoli #gaetanopiniCTO for this doc! 🔗bit.ly/4ggUMv0

🫶 #NBS2024, for the 2nd consecutive year ERN ReCONNET 🇪🇺 is happy to join this social media campaign to raise #awareness on such an important project for all the #raredisease community 🌍 🇪🇺 #Europe is leading the way for great #screening programs 🔗 bit.ly/3TrqUSX

🤝 happy to help ERICA in the dissemination of this important #survey! 🔗bit.ly/4cIYV80 TEDDY Network you might be interested in it.

🤝 onorati e felici di avere il Dr. Castori dell'IRCCS Casa Sollievo della Sofferenza IRCCS Casa Sollievo della Sofferenza come nuovo Coordinatore dell'#EDS. 👏 Congratulazioni e in bocca al lupo, siamo certi che farà un ottimo lavoro insieme a tutti gli altri membri! 🔗 bit.ly/479ICQr

💪Countdown to the🆕 ERN ReCONNET 🇪🇺 #webinar season is over! 🫵Are you ready? TODAY is the DAY. ⭐️Let's meet later at 4pm for our 1st episode on #AntiPhospholipidSyndrome with Dr Massimo Radin Dr Foddai n Prof. Savino Sciascia ✍️Registration is OPEN bit.ly/4dF5UjC

⭐️ our #APS patient org is sharing some insights on our amazing 1st NEW webinar! Take a look ⤵️⤵️⤵️ 🙏 thank you SAF España 🩸

⭐️ some cool insights from our 1st NEW webinar on #APS from our friend, SAF España 🩸 Thank you very much! Take a look ⤵️⤵️⤵️

⭐️ more insights on our NEW webinar on #APS from our friend, SAF España 🩸 Thank you very much! Take a look ⤵️⤵️⤵️

PART1🫶Thank you all, the #webinar held yesterday was a great success! A special thanks to Dr. Massimo Radin Dr Foddai n Prof. Savino Sciascia, congrats you did an amazing job👏 🩸 Thanks to SAF España for its incredible support n help along the way! Here are some pics

PART2🫶 📷Here are some other pics from yesterday 🎞️#Webinar recording will be available soon on our YouTube Channel youtube.com/@ERNReCONNET 👏 Thanks again n congrats to Dr Massimo Radin Dr Foddai n Prof. Savino Sciascia SAF España ⚙️Resources on APS reconnet.ern-net.eu/disease-aps/

🗞️@ernreconnet #Newsletter n. 2⃣6⃣- Sept.Edition 🍂 is out! ⭐️Take a look at our latest #news, actions, n initiatives, there is a collection of 13 interesting topics about our Network! 📰Enjoy the reading n subscribe to it if you haven't done it yet! 🔗NL bit.ly/3ToS8JS

🆕ERN ReCONNET 🇪🇺 #webinar with Prof Diederichsen with ePAGs Olga n Silke Schlüter moderated by Prof Lundberg 🎯Audience: #patients #caregivers n family members 📌Disease: #myositis 🗓️Sept. 25th - 4pm ✍️Registration is🆓bit.ly/3WUPBbe ⚙️ on IIM bit.ly/46zEHv2

🎞️Latest @ernreconnet #webinar on #APS w Dr Massimo Radin Dr Foddai n Prof Savino Sciascia is freely available on our #YouTubeChannel! 🔗Link bit.ly/3B376z5 🎓 Registration to other webinars is OPEN and FREE: bit.ly/3DxXDhi 🌐 More ℹ️ reconnet.ern-net.eu