ERN ReCONNET 🇪🇺
@ern_reconnet
European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases
ID:883260824546148352
https://reconnet.ern-net.eu/ 07-07-2017 09:46:05
2,4K Tweets
1,8K Followers
525 Following
Laurent ARNAUD
@Lupusreference
MD, PhD | Professor of #Rheumatology | #Lupus #SLE | #Digitalhealth | President of @SLEuroSociety | @ERN_ReCONNET Disease Coordinator for Lupus & RP 🇪🇺
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Lupus Europe
@LupusEurope
Lupus Europe is the umbrella association of currently 31 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.
Chris Wincup
@chriswincup
Rheumatologist specialising in #lupus @ King’s College Hospital 🏥 @VersusArthritis Research Fellow @UCL 🧪 OMERACT & EULAR SLE Working Group 🧬
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
EJP RD - European Joint Programme on Rare Diseases
@EJPRareDiseases
#EJPRD - European Joint Programme on Rare Diseases | RTs shares likes ≠ endorsement
The Lancet Rheumatology
@TheLancetRheum
The #LancetRheumatology is a clinical #rheumatology journal publishing innovative & practice-changing research & opinion across all #rheumatic & #MSK disorders
Latika
@LatikaGupta_
Rheumatologist & Immunologist | Co-chair @EMEUNET SoMe, @APLAR_org Young board| Myositis, digital health, equity researcher |
EULAR
@eular_org
The European Alliance of Associations for Rheumatology. The registration for #EULAR2024 Congress is now open!
Alessia Alunno
@alessia_alunno
MD PhD | Rheumatologist | 2018-2019 Chair of @EMEUNET | 2018-2019 Chair of @SIRyoung_IT | Socia Media Editor @ARD_BMJ |
Orphanet
@Orphanet
The reference portal and knowledge base for information on rare diseases and orphan drugs. Orphanet nomenclature, ORPHA codes, Orphanet RD Ontology @inserm
vasculitides
@vasculitides
Living with EGPA/Churg-Strauss Syndrome • NIH-funded researcher • vasculitis patient advocate
Matteo Piga
@RMD_clinic
MD | Professor of #Rheumatology | I post case reports and updates on RMDs | opinions are my owns
Nuria #Lupus
@TuLupus
Me define lo q soy y no lo q tengo. Escribo en @lupuseurope, @afosfolipido, @LupusJaen, @AcoluEspana, @lupusmadrid y https://t.co/zpXRSUnCnE
Autoimmune List
@AutoimmuneList
#Autoimmune diseases: information and worldwide medical news updates. https://t.co/zp6PHneZxj
Laura Andreoli
@lauraandreoli80
MD, PhD | Professor #Rheumatology @unibs_official | 2018-20 Chair @SIRyoung_IT | Social Media Advisor @ARD_BMJ | Member @APS_ACTION | #genderequity @EULAR_org
_ERNRITA
@_ERNRITA
ERN for Rare Immunodeficiency, autoinflammatory, autoimmune and paediatric rheumatology Diseases - For all patients with rare immune disorders in Europe
@ERN_RND 🧠
@ERN_RND
European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients. Free webinars: https://t.co/nowjhyNigm
EpiCARE
@EpiCARE_ERN
European Reference Network for Rare and Complex Epilepsies. We are 50 specialist hospitals in 24 European countries with expertise in epilepsy & research.
Asociación de #Lupus de Madrid
@LupusMadrid
La asociación AMELyA #Lupus Madrid tiene como objetivo mejorar la calidad de vida d toda persona afectada d lupus e informar a los afectados. Visita nuestra web
Aparachick
@aparachick
Please be kind and accepting and care for each other and this land we are custodians of. We are in a Covid Wave 🌊, mask 😷 to protect yourself and others🙏🏼
Alejandro Gómez Gómez
@agomezreuma
MD, PhD |Rheumatologist| Researcher. Sjögren Syndrome, Uveitis. GEACSER coordinator. EMEUNET subcommittee member.
Asociación DDX3X España
@DDX3X_ES
🧬Asociación creada por familias cuy@s hij@s presentan una mutación en el gen DDX3X. Entidad registrada en el Registro Nacional de Asociaciones en mayo de 2022.
Ricky Chotai (he/him)
@ricky_chotai
📍Manchester 🏢 Membership & Governance @nusconnect 🦋Trustee @LUPUSUK #northern | #LoveSUs | #politics | [email protected] | Views: own
Gavin Marshall
@marsh91914
Firefighter. Sjogrens
María Claudia Cabrera
@mclaudia_1
(Taylor’s Version)
Titheaus
@Titheausez_GG
Melissa Kacmaz
@melliissaa_
GAÜN Pediatric Rheumatology, Marmara Uni🎓 , Beşiktaş JK Congress Member 35059
LamaMohammed
@LamaMohamm7853
Vincent
@VincentBouget
EudoraMinnie
@6D797hzgz1V3BB
Nora
@nclooney
Lyd
@lypese_
Lui Nai Lee
@LuiNaiLee
ElectroMed
@ElectroMed97
Doctorado en medicina// El Salvador 🇸🇻// Persiguiendo el sueño de la residencia en medicina interna
A.
@Agushl4
I’m the same, but I’m trying to change.
Tressa Halen
@halen_tre
Pedia_gene
@pedia_gene
If there is a will,there is a way 🤞🏻
Abdurrahman TUFAN
@dr_atufan
Rheumatology | Autoinflammatory Diseases | Immune Dysregulation | Wearable IOT | Gazi University | NIH | NHGRI | P Mitt
@GDP86
Winsome Journals
@JournalsWinsome
WINSOME PUBLISHING. Articles Publishing
karla vanessa jiron
@VaneReumaped86
Pediatra Especialista en Reumatología Pediátrica
Rahul vijayan
@rvrheumato
Asha Alouf
@alouf_a
AGUSTIN FRANCO
@FRANCOAGUSTIN88
Cirujano Pediátrico 🇲🇽 👨🏻⚕️ Buscador de Artículos médicos 🧑🏻💻 🗂️📑🗃️🗞️ #Yo🙋🏻♂️Te ayudo a buscar 👀 🔍 Tu artículo free 🤠
DV_Singh
@divya_s_tapaswi
Nawf
@NF_633
Laura Scagnellato
@lascagnellato
Resident in Rheumatology at @UniPadova. Also, a curious mind splitted in science and art
GenoMed4All
@genomed4all
#H2020 project leveraging the power of #AI for #Genomics and Personalized Medicine in Haematological Diseases 🧬 Funded by the @EU_Commission 🇪🇺
REMEDi4ALL
@REMEDi4ALL
The European Platform for Medicines Repurposing
Roberta Gualtierotti
@r_gualtierotti
MD, PhD; Internal Medicine; Rheumatology; Riccardo’s mother; nature lover
alberto ruiz roman
@albertoruizrom4
Luigi Zolio
@zoliolu
Rheumatology Registrar. MMed Candidate, @UniMelb #SLE. Teaching Associate @Monash_FMNHS. Doctor wellbeing, hiking, guitarist. He/Him
Michal Zulcinski
@MichalZulcinski
Postdoctoral researcher at @UniversityLeeds. Computational Biology. Vasculitis.
Konstance
@4AtEsP9HtPVKJ
Melissa Kinch
@Melissa_Kinch_
PhD candidate UCD | Child, Adolescent & Family Research | Patient Voice & Engaged Research | Rare Disease Research | Methods Enthusiast | All views are my own
Grégoire Martin de Frémont
@GregoireMDF
MD in Internal Medicine and Clinical Immunology, APHP, Paris👨🏼⚕️ PhD student at Karolinska Institute, Stockholm 🧬
Begum Han
@begum_h
Assistant Professor at CMM @KarolinskaInst. Working on antigen specific #Tcells in #myositis. Aspiring #bioinformatician.#WomenInStem Opinions are my own
Livia Fogler
@FoglerLiv
Ana Sovero Utrilla
@asoverou
Enfermera Hospital Universitario de Torrevieja, #reumatología , #audiologia, #adherencia, #prevencioncaidas, #cuidados, #dolor, #cuidador
Ali Mursi
@AliMursi1
Dr Ali Mursi Rheumatology consultant
Momo Ramos
@MomoRamos4
Chin up darling, your crown is falling 🎶🍹👊💋😎👑🎵👜❤🤗🎼👠💅😘🎶
IgG4ward
@IgG4ward
IgG4ward! is the first and only organization solely dedicated to IgG4-RD advocacy, research, and support.
Emanuele Bozzalla Cassione
@e_bozzalla
Rheumatologist • PhD Student @unipv • @EMEUNET Country Liaison for Italy • @SIRYOUNG_IT committee member 2022-2024 (2020-2022) • 🍷buff
wani🧝🏽♀️
@wet_beeb
professional vampire zombie
Pancreatic Cancer Europe (PCE)
@P_C_E_
European platform that brings together stakeholders to improve care for patients with #pancreaticcancer.
Claire POGGI
@poggiclaire4
Elizabeth cal
@ecatulinan
Amira Roethler
@RoethlAmi
Roberto Valente
@RobValente83
MD, Senior Consultant Gastroenterologist, PhD, Pancreatologist, Head of Surgical Endoscopy, Umeå University Hospital, Sweden,ESGE social media working group