JWMDRC
@jwmdrc
John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University #dmd #sma #lgmd #fshd #dm1 #gne #col6 #cnm
ID:2819598778
https://jwmdrc.org/ 09-10-2014 13:25:24
2,6K Tweets
1,2K Followers
501 Following
Jordi Díaz-Manera
@querques2000
Professor of Neuromuscular Diseases at Newcastle University @jwmdrc. Passionate about clinical and basic research, but also about wine, sport, music and books.
WMS
@WorldMuscleSoc
We invite you to the 28th International Annual Congress of the World Muscle Society in 2023. This is the premier annual Congress on #neuromuscular disorders.
Mito Research
@MitoResearch
The latest news from the Wellcome Centre for Mitochondrial Research at Newcastle University. https://t.co/uadf04HQrn…
Muscular Dystrophy UK
@MDUK_News
We connect a community of over 110,000 people living with muscle wasting and weakening conditions. Together we are stronger. Join us. Our #MusclesMatter.
TREAT-NMD
@TREAT_NMD
This is the Twitter account of the TREAT-NMD Alliance, the neuromuscular network.
AnnemiekeAartsma-Rus
@oligogirl
Translating science from bench to bedside and from jargon to lay language
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Robert Muní Lofra
@rmunil
PT PhD, Consultant Physiotherapist, Honorary Clinical Senior Lecturer at @jwmdrc John Walton Muscular Dystrophy Research Centre-Newcastle Upon Tyne
Matthew S. Alexander
@Matt_Muscle_Guy
Geneticist, Skeletal Muscle, Drug development, Gene therapies. Non-coding RNA, and Zebrafish Aficionado. All tweets are my own. Instagram @thealexanderlab
Helen Walker
@helenmwalker44
UK Myotonic Dystrophy and UK FSHD Patient Registry Manager and Curator (she/her) *Views my own* #neuromuscular #PatientRegistries #dm1 #dm2 #fshd #RareDisease
FSHD News
@mpcfshd
FSHD NEWS over the world. Research and patients networks #FSHD #FacioScapuloHumeral # #WorldFSHDDay = June 20th
Dr Ali Kay 🧬📚🌳
@AliMakesHay
Find me by the coast, in the woods or in a bookshop. At other times, researching implications of genomics @RDMoxford Newbie runner🏃♀️
Sarepta Therapeutics
@Sarepta
Commercial-stage biopharma company focused on the discovery & development of precision genetic medicine to treat rare neuromuscular diseases. https://t.co/HFP4txOCxe
Dr. Amy Vincent (She/Her) [email protected]
@AmyV91
Sir Henry Wellcome Postdoctoral Fellow @NUAcT fellow @mitomusclelab @mitoresearch and @jwmdrc. @UKYoungAcademy member and exec group. She/Her. Views my own.
World Duchenne Organization
@worldduchenne
Global organization to find a cure and viable treatment for those lives affected by dystrophinopathies: Duchenne and Becker Muscular Dystrophy. RT ≠ endorsement
Duchenne UK
@DuchenneUK
Duchenne UK has one clear aim – to end Duchenne, a devastating muscle-wasting disease. We are the leading Duchenne muscular dystrophy charity in the UK.
Julien Ochala
@OchDr
Associate Professor at the University of Copenhagen focusing on the regulation of muscle cell function - https://t.co/eL6jcia7dQ
EJP RD - European Joint Programme on Rare Diseases
@EJPRareDiseases
#EJPRD - European Joint Programme on Rare Diseases | RTs shares likes ≠ endorsement
Joining Jack
@alljoinjack
We are joining Jack in the fight to find a cure for duchenne muscular dystrophy. Will you?
FSHD Society
@FSHDSociety
World’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD). Empowering patients, accelerating therapies. #CureFSHD
Vandana A Gupta
@ResearchMuscle
Assistant Prof. @BWHGenetics, Neuromuscular diseases, Human genetics, Zebrafish, caffeine and chocolate. Tweets mine.
British Cardiovascular Society
@BritishCardioSo
Official Twitter account for BCS || Championing Cardiovascular medicine in the UK for over 100 years #BCS #Cardiology #Medical
Northern Alliance ATTC
@naattc
Northern Alliance Advanced Therapies Treatment Centre - accelerating access to Advanced Therapies
University of Iowa Pediatric Neurology
@uiowapedsneuro
Official account of the Division of Child Neurology. Improving patient lives through excellence in clinical care, research, & education. #neurotwitter @uiowa
C-Path
@CPathInstitute
Critical Path Institute - Accelerating the Path to a Healthier World https://t.co/a14qYr9TdM
Sofía Portela Sánchez
@sofiaportelasan
Galega viviendo en Madrid. Neurología en HGUGM.
Dr Janet Hoskin
@janetahoskin
Associate Professor and Researcher. DMD Mum. Supporting disabled young people in their fight for equality. Views my own.
Susanne Driffield
@s_driffield
Regional Development Manager North England & East Midlands at Muscular Dystrophy UK. Mum to my DMD superhero Joe. All views are my own.
Academy of Medical Sciences
@acmedsci
Independent expert voice of biomedical and health research in the UK, fostering good health for all supported by the best research. Also @AMS_Careers
Laura Alexandra Smith
@LauraSmithNCL
Research associate at @MitoResearch @UniOfNewcastle funded by @GOSHCharity. Focus on mitochondria, epilepsy and neurodegeneration🧠
Dame Jackie Daniel
@JackieDanielNHS
CEO - The Newcastle Upon Tyne Hospitals. Passionate about NHS & quest for sustainable healthcare. Believe in people & liberating their full potential
john sayer
@johnasayer
Neil Rajan
@derm_scientist
Professor of Dermatogenetics @UniofNewcastle & Consultant Dermatologist @NewcastleHosps #genetics #skincancer #raredisease Views are mine; he/him/his
Helen Devine 💙
@HelenDevine10
Neurology registrar 🧠 @NIHR Clinical Lecturer 🧪 @uniofnewcastle @mitoresearch #MND #KD #raredisease #neuropathy #mitochondria #academicmedicine
Stefan McElwee
@stefmcelwee
birder, proud Headteacher, occasional twitcher, ex-rarity finder and long suffering Grimsby fan.
Sonia Segovia
@Nina_ninass16
Nirmal Khadka
@NirmalKhadka7
Muscular Dystrophy Affected Person. Founder & chairman at Muscular Dystrophy Organization Nepal.President at Rare Diseases Society Nepal
Boys don't cry
@DexterMorganbcn
Mi motivación para levantarme cada día? Me meo...😭😭 Soy paparrita 😉 LGMD2B/R2♿
SMABEYOND
@SMABEYOND
SMABEYOND – a Marie Sklodowska-Curie Innovative Training Network for research on peripheral organs in Spinal Muscular Atrophy (SMA) funded by the EU.
Priyanka Mehra
@Priyank55683054
PhD student at John Walton Muscular Dystrophy Research Center, Newcastle University. She/her 🇮🇳
Esther Fernández
@Estherfs21
RMSCT @ Newcastle University
@RMSCT_NCL
Official page of the Regenerative Medicine, Stem Cells, Transplantation. Research Theme in the Faculty of Medical Sciences @UniofNewcastle
Ben Monro-Davies
@benm_d
GB NEWS; Trustee @thepcrc podcaster on the arts with @midaspr and golf @vpargolf. Previously Sky News, BBC, Channel 4 News, Duchenne UK
The Sequal Trust
@sequaltrust
Charity which fundraises to provide communication equipment to disabled people in the UK with speech and/or movement problems or severe learning difficulties.
Open Heart
@Open_HeartBMJ
An #OpenAccess journal publishing research in #cardiovascular medicine. Companion journal to @Heart_BMJ. Published with @BritishCardioSo
Astellas Gene Therapies
@AstellasGeneTx
We are developing genetic medicines with the potential to deliver transformative value for patients.
Care4Rare Canada
@C4RCanada
Canada-wide research group improving diagnostic care for people with rare genetic diseases. #EndTheDiagnosticOdyssey
Rare Disease Day Aus
@RareDayAus
Help us to share the word about Rare Disease Day 2014 on February 28, 2014. #RareDisease
Rare Disease Day US
@RareDayUS
2/28/19. #ShowYourStripes & join the movement in the US & around the world for #RareDiseaseDay. (Hosted in the US by @RareDiseases.)
Rare Genomics
@RareGenomics
RGI is a non-profit organization that provides research to families in need of diagnosis & treatment for rare genetic diseases.
RareShare
@RareShareOrg
RareShare is a social platform building communities for patients, families, and healthcare professionals affected by rare medical disorders.
Rare Disease Team
@RareDxResearch
A Canadian research team focusing on rare disease policy.
Neuromuscular MRI
@NMD_MRI
Neuromuscular MRI research at the MRC Centre for Neuromuscular Diseases, UCL
FOR DMD
@FOR_DMD
FOR DMD: an international multi-centre study comparing the benefits and side effects of three steroid regimes in boys with Duchenne Muscular Dystrophy
Duchenne Foundation
@DMDfoundation
Focusing on Improving the quality and length of life for those living with Duchenne across Australia, through, research, education, support, care and advocacy.
The Duchenne Registry Australia
@duchenneregaus
Cure SMA Foundation of India 🇮🇳
@curesmaindia
Making Spinal Muscular Atrophy treatment and cure accessible and affordable to Indians.
Santhera
@Santhera
#Santhera is passionate about improving the lives of patients with #RareDisease. #Duchenne #DMD #neuromuscular #vamorolone #lonodelestat
Duchenne Awareness UK
@DuchenneAware
On a mission to raise much-needed awareness of the life-limiting genetic disease Duchenne Muscular Dystrophy
Muscle Help Foundation
@musclewarrior
Small impact-led charity aiming to fulfil 657 life-changing Muscle Dream interventions for children & young people (8-28yrs) with muscular dystrophy #powerof657
Medics4RareDiseases
@M4RareDiseases
Medics4RareDiseases is driving an attitude change towards rare diseases amongst medical students and doctors in training #DareToThinkRare
FSHD Canada
@FSHDCanada
Myotonic Dystrophy
@MyotonicDotOrg
MDF's Twitter handle is now @CareAndACureMDF - follow us there! http://t.co/TaM1aII5rG http://t.co/mT3x2VqsKY
CMT United Kingdom
@CMTUnitedKdom
CMTUK - the UK's charity supporting people living with Charcot-Marie-Tooth disease - the most common rare neuropathy.
CheckRare
@CheckRare
Leading publisher and learning platform focused on rare diseases. Rare Diseases Are Our Focus, Expertise, and Passion.
RareLove.life
@RareloveLife
We are RARE. The first commumity-based #raredisease business center for the #rare360 program by @rareadvocacy #NothingAboutUsWithoutUs
CMT Kids
@CMTKids
UK based, not exactly kids but mostly under 25! We have a muscle wasting disease 'CMT' so are all wobbly walkers but love to fundraise for adventure weekends.
Horvath Lab
@HorvathLab
The Horvath Lab is a research group at @Cambridge_Uni with a focus on mitochondrial diseases and inherited neuropathies.
Cambridge Clinical Mitochondrial Research Group
@cam_mito
MitoCAMB brings together a team of clinical researchers focused on mitochondrial and neurodegenerative disease translational research. (Photo: Florian Klimm)