SCDAA excited to be here and thankful to present on National Alliance of Sickle Cell Centers and how we are improving access’s to care and supporting #sicklecell and #sicklecell centers

Love hearing from Sickle Cell Fund and Dr. Karen Proudford at our HRSA #sicklecelldisease treatment demonstration project. “We have to work together.” As part of SiNERGe SCD they have brought CBO together to make real change.

Excited to be HRSA for our #SCDTDP #sicklecell treatment demonstration program to discuss HOW we improve #accesstocare for people living with #SickleCellDisease and thrilled to hear we will collaborate on #GRNDaD national SCd registry

We were at NIH NHLBI this week to share updates on the Sickle Cell Data Collection (SCDC) project. It has been a productive 4 years for these 11 states and the future looks bright! NIH CDC Sarah Reeves University of Memphis Jane Hankins, MD, MS Julie Kanter

And now. Adult screening recommendations for #sicklecelldisease National Alliance of Sickle Cell Centers sicklecellcenters.org

All children with #sicklecelldisease should be seen AT LEAST annually by a #sicklecellcenter and payers should cover this! National Alliance of Sickle Cell Centers for center list NIH NHLBI and we must provide federal funding for #NASCC SCD centers just as there is support for #cancer #HIV and other dx

So excited to see National Alliance of Sickle Cell Centers consensus recommendations coming to life at the #NIH sickle cell meetings. #sicklecellmatters #sicklecelldisease . #1 recommendation is all people with #SCD deserve access to a #sicklecellspecialist sicklecellcenters.org Seethal Jacob, MD, MS

Excited to present our first round of National Alliance of Sickle Cell Centers consensus recommendations to improve care and standardize screening in #sicklecelldisease at NIH NHLBI today. #sicklecellcenters #sicklecellmatters

Wonderful collaboration amongst some of the best and brightest minds in #sicklecell for #NASSC 2023 Day 3!

National Alliance of Sickle Cell Centers Julie Kanter

National Alliance of Sickle Cell Centers Julie Kanter

When you love what you do and the people with whom you get to work National Alliance of Sickle Cell Centers #consensus2023 #sicklecell centers #sicklecell

#togetherwecan do better for ALL people with #sicklecelldisease . #sicklecellcenters need federal funding to improve outcomes and even the odds. We can help. Check out sicklecellcenters.org to see where there is a #SCD center in your state!
parents.com/pregnant-peopl…

YES!! #sicklecellcenters need #fertility #obgyn AND #mentalhealth please! We need federal support to take our 76 current #NASCCSCD centers to the next level

Every person with #sicklecelldisease needs a #sicklecellspecialist especially during pregnancy

We have 75 associate or full member sickle cell centers recognized by #NASCC . We can care for the whole person living with #SickleCell and we need sustainable funding.

Some patients needing blood transfusions require a closer blood type match than the main blood types (O+, O-, A+, A-, B+, B-, AB+, AB-). The most compatible blood match will often come from a donor of the same race or a similar ethnicity. Learn more at: bit.ly/3G9B84e

SO important to avoid unnecessary #steroids in #sicklecelldisease . PSA for #urgentcare #doctors #providers everywhere giving #systemicsteroids for viral infections. Please do NOT give this medication to people with #SCD without calling a specialist.

🌉The first barrier to transition is getting to the bridge.

'The most notable and unexpected finding, however, was the number of patients who had become lost to follow-up before 15 years of age.'

#SickleCellDiseaese

onlinelibrary.wiley.com/doi/10.1002/pb…

We are so excited about the possibilities of national support for our sickle cell center alliance to really enhance #accesstocare for those living with #sicklecelldisease with real support for providers treating #SCD for both physical and #Mentalhealth
#sicklecellmatters