We should be making care MORE accessible. Our #healthsystem is failing the people it is supposed to protect. #DoBetter this is a United States problem that won’t be fixed until we change the way #healthcare is delivered.

So much inequity for our #SickleCell warriors

Livestrong have you had the opportunity to learn about sickle cell disease? Many of us would be happy to have a conversation which I think would open your eyes to the impact you can have for this too often ignored group of patients

Congratulations!!!

We are so incredibly lucky to have Melissa Creary, PhD, MPH share her wisdom with our team as we aim to continually improve the culture related to sickle cell disease here focused on optimizing the lives and care of our patients

Do better. The New York Times I am disgusted at your lack of truth and dignity.

Yes as a first time #EBMT24 attendee and speaker it was fantastic! Thank you for inviting me and for creating a #hemoglobinopathy working group!!

Conversations abt #stemcelltransplant , #genetherapy & #bonemarrowtransplant for ppl with #sicklecelldisease means the experts in #SCD must be in the room. #sicklecellspecialists & #sicklecellcenters National Alliance of Sickle Cell Centers are ready to partner. We want to be #intheroomwhereithappens #EBMT24

New this year at #EBMT24 - the Hemoglobinopathies Working Party was created in recognition that patients now have several therapeutic options to choose from. Watch as Representatives from the HWP sit down with EBMT TV to discuss further! The EBMT youtu.be/UCFpVAq9ijE

Woman who saw tomorrow!

Gluckman performed first cord blood transplant in the world and laid foundation for alternative donor Stem cell transplants

#EBMT24

Fantastic plenary talk from Rob Wynn BMTU/Ward 79 Stem Cell Unit discussing current and future potential for gene therapy in rare disorders #EBMT24 . We’ve come a long way but so much more to do when it comes to rare diseases The EBMT

#TogetherWeCan transform #sicklecelldisease and improve lives but we must use a team approach that involves the #sicklecellspecialist

#EBMT24 Julie Kanter lets be clear, #genetherapy is not curative for #SCD ... we dont fix the gene, we introduce or edit the gene... it is a transformative therapy, the hematologist still need to follow these patients ... the story does not end after #GeneTherapy

So excited for a hemoglobinopathy working group at #EBMT24 #sicklecell
#thalassemia
Both conditions are curable with allogeneic stem cell transplant

Definitely. Looking forward to it. Am free after opening ceremony Sunday also free Mon night. #EBMT24 #SickleCell

Who cares for the mountains of children with asthma in this country??

Robyn Cohen MD,MPH does.

President Biden Vice President Kamala Harris Farah Yousry help her out.

Thankful for my amazing #sicklecell team UAB Medicine. We don’t do anything alone better than we all do together. There is no “i” in team and my team is THE BEST. It is really hard to be a #womaninmedicine and a #girlboss #sicklecell matters.

Expanding Medicaid improves health AND leads to a healthier economy.

I’ve taken that to the U.S. Senate.

Alabama, 12 of our rural hospitals have closed in the past decade, & more to come. We can’t be last.

What Mississippi’s House Speaker said.👇🏾

msnbc.com/rachel-maddow-…

Our very own Julie Kanter was recently featured on CNBC talking about the new #GeneTherapies ! cnbc.com/2024/02/23/sic…
#SickleCellAwareness