VASCERN
@vascern
Gathering the best expertise in Europe to provide accessible cross-border healthcare to patients with rare vascular diseases #ERNeu #RareDiseases
ID: 836169384297119744
http://www.vascern.eu 27-02-2017 11:01:31
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1,1K Followers
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Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
European Society of Cardiology
@escardio
European Society of Cardiology. Join us also on @ESC_Journals @ESCAdvocacy @ESCardioNews @ESC_President. #ESCCongress #ESCGuidelines #ESCTVToday #ESCDigital
Dara Elle
@godgimmesoul
Artist. Anglophile. Audiophile. Bookworm. Redhead. Photographer. Geek. Entrepreneur. Insomniac. Procrastinator. Perfectionist. Musician. Mad fer it.
TheMarfanFoundation
@marfanfdn
The Marfan Foundation works to save lives and improve the quality of life of individuals with Marfan syndrome and other genetic aortic conditions.
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Rubícon
@ijhoa
A goal without a plan is only a wish. Deo Volente🔖 R3CG 🦁🦅∞ trepa cerros pero me chingue la rodilla
bikini_krill
@_amy_kate_
mostly re-tweets, because I’m not very funny or interesting
Steven Brown
@spbrown59
Retired Whirlpool Evansville employee.
Julie De Backer
@judbacke
Genetic Cardiologist @uzgent @ugent | Interest in #ACHD and #Marfan | FESC @escardio
Alström Syndrome UK
@as_uk
'Alström Syndrome is a rare genetic condition affecting every organ in the body. ASUK provides support & guidance for those affected.' Tweets by Catherine Lewis
World Orphan Drug Congress
@orphan_drugs
World Orphan Drug Congress Europe | 22 - 25 October, 2024 | Fira de Barcelona Montjuic, Barcelona, Spain
European Liver Patients' Association
@europeliver
Elevate your awareness with ELPA! Uniting for liver health in Europe, we dazzle with passion and shine in the fight against liver disease
Gareth Owens
@icarus1054
#AorticDissection survivor thx to @NHSBartsHealth. Dacron inside by @TerumoAortic. #PatientLeader, Chair @AorticDissectUK & the global @THINK__AORTA campaign.
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Emma McEvoy
@dremmamcevoy
Assistant Professor in Law at Dublin City University, School of Law and Government. Tweets on procurement law, health procurement, social enterprise
Orphanet
@orphanet
The reference portal and knowledge base for information on rare diseases and orphan drugs. Orphanet nomenclature, ORPHA codes, Orphanet RD Ontology @inserm
Francesca Clementina
@radiofrancesca
Medics4RareDiseases
@m4rarediseases
Medics4RareDiseases is driving an attitude change towards rare diseases amongst medical students and doctors in training #DareToThinkRare
Marie-Cécile Gaillard
@mciiiiii
Cambridge Rare Disease Network (CamRARE)
@camraredisease
Improving #RareDisease lives. Creators of #RAREfest, #RAREsummit, Companies Forum & #UniqueFeetCam m.youtube.com/watch?v=49D6CW…
elena cervi
@cervi_deers
RDI
@rarediseasesint
Rare Diseases International - the global alliance of rare disease patients & families
Oscar Vergara Huidor
@oscarvergara_md
Residente de Cardiología 🫀 Hospital Civil de Guadalajara FAA 🏥 V = C + H • A 📈
Grupa American Heart of Poland
@ahp_paks
20+ ośr. med. @NFZ_GOV_PL: szpitale, Polsko-Amerykańskie Kliniki Serca, @UzdrowiskoU, #CBR, #BCBK, zsercemdopacjenta.pl❤️Jesteśmy częścią @grupposandonato
Otto Olivas
@medbibliomano
Reumatologo, bookworm y aficionado al teatro
Guillaume Canaud (MD, PhD)
@canaudlab
Translational medicine. Hôpital Necker Enfants Malades/Université Paris Cité.
exceptionallylaud
@exceptionallyl1
Sarah Raevens
@raevenssarah
Hepatologist @uzgent - FWO senior clinical investigator @UGent - complications of chronic liver disease, vascular biology
Moyamoya Foundation
@moyamoyafdn
A 501(c)(3) organization for people with moyamoya, a rare, progressive cerebrovascular disease. We support research & assist patients with uninsured costs.
European Reference Network on Rare Bone Diseases
@ern_bond
Share. Care. Cure.
ERDERA
@erdera_org
#ERDERA- The European Rare Diseases Research Alliance
SEDSConnective
@sedsconnective
Hypermobility EDS / HSD/ NEURODIVERGENCE diverse Charity health/education/care/work Chair/Founder Jane Green MBE @JGJanegreenMBE Patron Dr Eccles @Bendybrain
Pilar Crespo
@crespo_mp
Rehabilitadora. Médico de Familia #linfedema #rehabilitaciónoncológica #ejercicioycancer 🔍 Inst Provincial Rehabilitación-Gregorio Marañón
Alex Rivera Toquica
@riveratoquicamd
MD Internista Cardiólogo/Magíster Epidemiología-Máster en Insuficiencia Cardíaca y Ecocardiografía-Docente Postgrado UTP-Centro Médico para el Corazón-Pereira
Candice Au
@candiceau4
:)
Tim
@kiodkiod1
Big Game Hunter🦍
Lymphedema Warriors Association Uganda
@lymphawarriors
We are patient focused, non-profit organization co-founded by patients in 2022 dedicated to supporting individuals affected by lymphedema in Uganda. Our mission
Screen4Rare
@screen4rare
A multi-stakeholder platform launched by IPOPI, ISNS and ESID aiming to exchange knowledge and best practices on newborn screening for rare diseases.
AT
@at_amai
Marketing Manager @Australo: Marketing Lab for Research and Innovation projects to real-life application. #H2020 & #HorizonEurope.
Brynja Matthiasardottir
@brynjmatt
PhD candidate (Bioinformatically inclined), NIH-NHGRI and UMD-CBBG, Interest in inflammatory disease
Melissa Kinch
@melissa_kinch_
PhD candidate UCD | Child, Adolescent & Family Research | Patient Voice & Engaged Research | Rare Disease Research | Methods Enthusiast | All views are my own
Camille ANDRIEU
@camille96369921
Rosa De Fata
@fata1_rosa
Yarelis Gonzalez-Vargas
@yarelisgv
Post-doctoral Researcher @ Laboratory of Lymphatic Biology and Bioengineering #Boricua 🇵🇷 #LatinaInSTEM
strongerthancrps
@strongrthancrps
Complex Regional Pain Syndrome Info & Support
Preventable
@preventable_eu
Preventable Horizon Europe Project Sustainable Care for Rare Tumour Risk Syndromes (RTRS)
Cancer Prevention at Work Project
@cpw_project
Assessing cancer-related infections like #HPV #HCV #Hp surveillance in primary occupational health prevention programs. #CPWproject #CancerEUproject
Dr Nima Ghadiri
@drnimaghadiri
Medical Ophthalmology Consultant (Ophthalmic Physician) | FRCP | Med Ed | NIHR Research Scholar | Uveitis Lead Clinician | Ocular Inflammation | Neuro 👁️⚕️🧠📖
Genival Vidal dos Santos
@genivalvid98027
Medical Radiology Technician, Vascular Surgery Programming, 15 years of experience as a material technician, with more than 5,000 cases assisted 🇧🇷
surgicalpersonality
@surgicalpe44114
Corentin Humbert
@corentinhum
étudiant médecine uclouvain swim - bike - run
Medical Ophthalmology Society UK
@mosuknews
Founded 1999: Fostering collaboration between medicine and ophthalmology, and to stimulating interest in the fascinating speciality of ophthalmic medicine.
RodrigoBagnatiMD
@rodrigobagnati
Cardiólogo. MTSAC. Hospital Italiano Coordinador del servicio de Cardiología - San Justo. Patología aórtica. Marfan. LDS. Turner. Válvula aórtica bicúspide
winsome publishing
@winsomepublish
WINSOME PUBLISHING
Hanna Hyvönen
@hannaxhyvonen
CADASIL Support UK
@cadasilsupport
Bhuvaneshwar vanniyar Bhuvanesh
@bhuvivasumatin
Rare Disease Research Network (RDRN)
@the_rdrn
Building a rare disease research network for a patient-led approach
Elizabeth cal
@ecatulinan
European Society of Vascular Medicine
@esvm_
Official account of the European Society of Vascular Medicine #vascular
TRS Kompetansesenter
@trs_sunnaas
TRS is a National resource center for rare diseases located at Sunnaas Hospital in Norway.
_ERNRITA
@_ernrita
ERN for Rare Immunodeficiency, autoinflammatory, autoimmune and paediatric rheumatology Diseases - For all patients with rare immune disorders in Europe
Miikka. Vikkula
@miikkavikkula
🇸🇦
@edukusa
.( إنما العلم بالتعلم و إنما الحلم بالتحلم)
ERN ReCONNET 🇪🇺
@ern_reconnet
🔬🩺 European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases #ERNReCONNET
ERN-ITHACA
@ernithaca
European Reference Network on congenital malformations and rare intellectual disability (ERN-ITHACA).
EpiCARE
@epicare_ern
European Reference Network for Rare and Complex Epilepsies. We are 50 specialist hospitals in 24 European countries with expertise in epilepsy & research.
ERN-EYE
@erneyeeu
ern-eye.eu - ERN-EYE is a European Reference Network dedicated to Rare Eye Diseases.
Dr. Javier del Boz dermatólogo
@ddermatologo
Dermatólogo en la Costa del Sol Vicepresidente de la Sección Andaluza de la AEDV Director de la revista Más Dematología masdermatologia.com
@ERN_RND 🧠
@ern_rnd
European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients. Free webinars: bit.ly/33mMY4C