Resharing an article written by our own Shelagh Ross. Her patient perspective of turning 60 with (CHD): "Most healthy people assume they will see grandchildren and retirement, but most of us 60+, and our families, never imagined we would live this long. " doi.org/10.1093/eurjcn…

2 months to go!!! Be sure to get Early 🐦 registration and lock in your hotel! #CNOC2024 cardiacneuro.org/12th-scientifi…

Congratulations Kristi! You always go above and beyond -- not only for your patients, but everyone touched by #CHD!

Structural Heart Disease Fellowship – 2025 Vanderbilt University Medical Center has one opening for the Structural Heart Disease Fellowship. This position offers advanced training in one of the nation’s top Valve Centers. 🔹 Apply Here: medicine.vumc.org/divisions/card… The application

Dr. Anitha John of Children's National Hospital 🏥 and Dr. Roni Jacobsen of Children's Hospital Colorado attended the Asian Pacific Heart Forum 2024 in Japan! Dr. John presented on the CHI and key findings from our community of adults living with CHD:

Great work by our #transition team in running today’s #transitiontour of Barts Health to introduce some of our new patients from Great Ormond Street Hospital for Children to their new hospital and heart care team🫀 💚 👋 #CHD #ACHD #CHDtransition #ACHDtransition #teamworkmakesthedreamwork

Led by Dr. Ryan Keane et al. Cleveland Clinic Duke Health - new #CCCTN analysis characterizes the landscape of Adult Congenital Heart Disease #ACHD 🫀 across contemporary CICUs Now in JACC Journals #JACCAdvances 👇 jacc.org/doi/10.1016/j.…

Clinician Perceptions of Family-Centered Care in Pediatric and Congenital Heart Settings Congrats Farah Akram michelle farrar #HealthPolicy JAMA Network Open Cincinnati Children’s Research Cincinnati Children's Heart Institute Sydney Children's Hospitals Network Cardiac Newborn Neuroprotective Network Cardiac Neurodevelopmental Outcome Collaborative NPCQIC Pediatric Heart Network jamanetwork.com/journals/jaman…

Critical Care Cardiology Trials Network Cleveland Clinic Duke Health JACC Journals Anthony Carnicelli, MD FACC Kevin S Shah, MD Sean van Diepen Jason N. Katz "These findings emphasize the need for clinical expertise and training in both cardiac and extracardiac complications of ACHD in the CICU setting" - mortality cited is way too high! #ACHD patients need to be hospitalized in dedicated congenital heart joint peds/adult unit !!

A great and important article by Canada’s Carolyn Thomas ☮️ Global ARCH Zipper Sisters CACH Network HeartLife Foundation Somerville Heart Foundation ACHA cchaforlife Int’l Society for Adult Congenital Heart Disease🌎

Registration is now open for our Fall 2024 Learning Session! All network members including patients, families, and care center teams are invited to attend. There is no registration fee for patients and families. Visit buff.ly/4ckX9K5 for details and to register!

The next CHI Annual Report is on its way! This year’s report includes details on registry sub-studies, conferences, and new data on areas like insurance and employment. Stay tuned for more!

Been out for a few months, but worth a read from Additional Ventures - an Ex Summary on the Economic Burden of #CHD on the patient & family. In need for a thoughtful look with policy makers, improve funding & research. ACHA American College of Cardiology additionalventures.org/wp-content/upl…

🌍 Save the Date for the Global ARCH Virtual Summit! 🗓️ Mark your calendars for 12-13 November 2024! We're thrilled to host our first-ever Global ARCH Virtual Summit. Join us to discuss steps to address the gaps in #CHD/#RHD care & explore solutions for improvement. Stay tuned!

Meet our new ACHD Cardiologist, Dr Tony Pastor, MD ❤️🎉🥳 Trained by Boston Adult Congenital Heart Program Boston Children's Texas Children's We are so excited to welcome him back! His interests include cardiac mri, medical education, and working out💪

It seems ….10-20 #ACHD fellowship applicants around the country! Still not enough for needs around the country …ACHA American College of Cardiology American Board of Internal Medicine (ABIM) American Board of Pediatrics (ABP)

Hope to see as many as possible in St. Louis! #ACHD #CHD

Ali N Zaidi, MD Zipper Sisters ACHA American College of Cardiology American Board of Internal Medicine (ABIM) American Board of Pediatrics (ABP) Agreed. Far too few. We need to convince more people of something we all already know. #ACHD is one of the best specialties out there!!

Sometimes as an #ACHD cardiologist you strike gold! and even after 30 year gap in care turn up an old op note from the 1970s... Have you seen your #ACHD doc lately...or at least in the last decade ;) Sarah Goldstein Jeffrey M Vinocur ACHA @yaleACHD #CHD #CHDCare4Life

Not two #ACHD patients are the same If you want to practice #personalized #medicine, join the #ACHD workforce #ISACHD #MadamePresident European Society of Cardiology #CardioTwitter