Being diagnosed with GIST can be overwhelming. Here are some FAQ’s that will help you understand your diagnosis. liferaftgroup.org/gist-faq/ #gistFAQs #gisteducation #sarcoma

Our featured Patient of the Month is Phil Honsey of Ohio. Read his story here: liferaftgroup.org/2022/10/patien… #patientofthemonth #memberstories #timetotellthestories #sarcoma

There's still time to register for our last in-person GDOL of the year - Miami - Nov. 4&5: bit.ly/MiamiGDOL and check out our upcoming webinars and online support groups: bit.ly/LRGEvents
#lrgevents #gistdayoflearning #supportgroups #sarcoma

Identification of actionable genomic alterations are pivotal across cancer management/treatment. Practical considerations to apply liquid biopsy in cancer, a rapidly emerging and evolving technology for tumor profiling in personalized medicine. ja.ma/3s8UPkW

Make sure you're ready for flu season! The latest info on getting prepared is here: liferaftgroup.org/2022/10/prepar…
#fluseason #staywell #sarcoma #CDC

CSC invites you to attend a free 4-part webinar series on cancer caregiving starting November 3, 2022. This series offers information to help navigate the roles you'll take on as a caregiver.

Click here to register: bit.ly/CSCcaregiverse…

We've got a terrific list of experienced #pheo #para centers. You need to entrust your care to a medical team that understands this disease.
Check out our Centers of Excellence:
pheopara.org/education/cent…

When you live with #cancer it can feel like you're drowning in #fear and #confusion . Finding others on similar paths can #help keep you afloat. Our #SupportGroups are held at 1.30pm (AEDT) via phone or online. Call 1800 257 600 or email [email protected] to register

Join us for our peer-to-peer groups, facilitated by volunteers who care. We attempt to create an organic discussion, taking it where it leads. We do not discuss treatment specifics or medication specifics.
#sarcoma , #dragonslayersunite , #nwsarcoma
classy.org/event/sarcoma-…

Note that some #GIST carry a BRAF V600E mutation...

A summary of our trip to the 2022 NORD Summit where patients, caregivers & PAGs gathered w/healthcare professionals, researchers & government agencies to discuss important topics in care, treatment & research. bit.ly/SummitSummaryN… #raredisease #sarcoma #patientadvocacy

Cancer isn’t a one size fits all experience.

Our award-winning Health Insurance Animated Video Series breaks down complicated topics, like picking a health insurance plan, in about five minutes. Watch now for FREE! loom.ly/iUm6vfQ

#5DaysOfOE #CancerRights #GetCovered #BeyondDiagnosis

Good advice, but not possible for many patients due to cost (time and money), insurance constraints, distance, etc. We need to talk about patient-friendly practical solutions to the challenges rare diseases pose, especially if we’re serious about #DEI .

Join our #Cancer Support Services team for their #Fall Festival! 🎃 This event is open to everyone and will include:

🍂 Live #music
🍂 Interactive #art therapy
🍂 Nutrition activities

We look forward to seeing you there!

Calling all #cancer providers and #researchers ! Join us at the inaugural Sylvester Cancer #Survivorship Symposium. The event will focus on topics such as symptom burden, quality of life in survivorship, disparities in survivorship outcomes, and much more! loom.ly/ievVhX4

Functional precision oncology: Testing tumors with drugs to identify vulnerabilities and novel combinations: Cancer Cell cell.com/cancer-cell/fu…

#Genechat I get emails about imaging. How to decide whether MRI, PET, DOTATATE for #SDHx is right for your patient?

1. Here’s a handy tool I often reference to refresh myself.
2. Identify a collaborator to tailor reccs from the start! Our radiologist is invaluable. #ISP2022

Great things happen when the LRG Board of Directors connect for their quarterly meeting! Tonight, this amazing group gathers to share their wisdom and experience. (Partial Board pictured at Life Fest New Orleans 2022) liferaftgroup.org/board-of-direc… #boardofdirectors #sarcoma