Long Covid Kids - #LongCovidKids
@LongCovidKids
UK-based, international charity supporting and advocating for families and children living with Long Covid & related illnesses. https://t.co/QjkCJVG3tI
ID:1304036484920606720
https://www.longcovidkids.org 10-09-2020 12:38:37
30,3K Tweets
30,0K Followers
4,2K Following
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#MasksInSchools Dr Noor Bari
MBBS BSc Hons Infectious Diseases ๐ฌ๐ง ๐ฆ๐บ Zero COVID Australia
Binita Kane
Lung Doctor | Member @IndependentSAGE | Co-founder #southasianheritagemonth @SAHM_UK | #longcovidkids champion | Resp lead @healthinnovmcr | Views are my own
Hannah Davis
Research, generative music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled & @itsbodypolitic. She/her. DMs rarely checked
Dr Elisa Perego
#LongCovid || covid-19 || post ๐ฆ disease || inequality, health, disability in present ~ past society || views own || Honorary Research Fellow UCL Arch
charlos
๐๐๐ท #LongCovid March 2020 ๐ตโ๐ซ
Smashing it two days in a row Alex Cole-Hamilton MSP๐ถ๐บ๐ฆ ๐ฅ๐๐ผ
Alex highlights #LongCovid #LongCovid Kids on BBC debate night ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ
Hundreds of thousands of Scots suffering; unable to work, unable to study, go to school, unable to access care or treatment via the NHS, isolated & abandoned.
โค๏ธSTRONGER TOGETHERโค๏ธ making one quick call will help our entire community create a directory of places we can access safer healthcare. 65 seconds to help 65 million. We can do this, please support us and pick up the phone. safeinside.co.uk/month-of-noise #safeinside
Thank you for getting #LongCovid #LongCovid Kids into your speech, Alex.
Hugely appreciated that you, Jackie Baillie & Dr Sandesh Gulhane MSP keep our community relevant and keep pushing for better support & treatment to be available.
More #LongCovid Kids are joining our ranks every day ๐ฅบ
OUR WEBSITE IS LIVE
#MEAwarenessHour #TheChronicCollaboration
We hope this moment will be the start of a sea change for #ChronicIllness communities. We're determined it will be. Please have a look at the website, support it if you can, & do share.
thechroniccollaboration.com
Poem by Long Covid Kids - #LongCovidKids Health Team Lead ๐บ๐ฆ ๐ต๐ธ Kirsty Stanley Occupation4Life ๐ #LongCovid for all seasons.
How do the media portray #LongCovidKids . Charity Founder Sammie McFarland collaborated with Prof Nisreen Alwan ๐ป and @chloeconnor7 to find out.
Looking forward to this event in June & meeting new parents & patients.
Am honoured to be hosting a 1.5hr workshop (in my role as Irish rep for Long Covid Kids - #LongCovidKids charity).
June 8th Mater Dublin
Virtual & in person
25 euro (Note: patient groups are not being paid to present etc).
Latest UK data for self-reported #LongCovid for England and Scotland
A rise in cases, despite the removal of access to testing and vaccination.
Long COVID is damaging public health!!
We need urgent investment to continue our response to a pandemic that is not over!!!
#LongCovid is a chronic illness. Itโs relentless and unforgiving. One day - all #LongCovid kids will realise how hard itโs been and how brave they are. Last night though - Neath Port Talbot Council honoured this young lady for just that - overcoming adversity and not letting it define her
People with Long Covid regularly ask 'how will reinfection with Covid affect me?'
We & Long Covid Kids - #LongCovidKids addressed this in our 2022 reinfection survey but we need new data to understand it as SARS-CoV-2 evolves
We welcome Visible new reinfection study, take part if you can
I just nominated Long Covid Kids - #LongCovidKids it would be awesome ๐ if you did too.
ยฃ5000 could help the team support more families in crisis or create new resources.
One click ๐ค ๐ ๐ #LongCovid Kids
#LongCovid
health.movementforgood.com/index.php?cn=1โฆ
What an amazing session we had today! Join us next week for more choir fun! Long Covid Kids - #LongCovidKids Lorna Glasgow Katie #LongCovidKids
Thank you Frankie Morland for popping by to show us how our song is coming along. It sounds amazing! Sarah Field
Long Covid Kids Founder Sammie McFarland asks researchers where is the childโs voice in your research. #LongcovidKids
Report on Airborne pathogens - such as SARS-Cov-2 that causes Covid-19 that can go on to cause #LongCovid . More support for the call for #CleanAir and #LayeredMitigations
Listening to the brilliant Jessica DeMars at the Rehabilitation Science Research Network for COVID in Toronto!!
Setting out the science & the facts that #longcovid is NOT deconditioning nor is it psychomatic or kinesiophobia.
Great insight & recommendations on how to recognise LC in practice!
Inspirational ๐๐ผ
LCAI Co-founder and Irish rep for Long Covid Kids - #LongCovidKids, Sarah O'Connell speaking about how #LongCovid is impacting children in #Ireland and the urgent need for specialised care at yesterdayโs Health Committee hearing