Christine Von Raesfeld
@cvonraesfeld
Connector I Storyteller | PatientPerspective I Speaker I Mentor I Friend I Dedicated to #BreakingSilos in #Healthcare
ID:179416232
https://www.linkedin.com/in/cvonraesfeld 17-08-2010 06:45:31
5,8K Tweets
2,1K Followers
1,9K Following
Rare Disease Day Special on the pod! Dive into insights from Christine Von Raesfeld on pharmacogenomics, patient access, cybersecurity and PHI challenges, healthcare informatics, and more, and let us know what your favorite part is. I have so many!
#digitalhealth #healthtech #himss24
So thrilled to have Christine Von Raesfeld on the pod to round out this rare disease week. In this episode, she dives into advice for healthcare consumers looking to share their story publicly.
Listen to the full episode here: hiteawithgrace.com
#HIMSS24 #RareDisease Day #RareDisease
Prashant Natarajan Dr. Miller-Meeks Congresswoman Julia Brownley Sharon Goldman Callie Starnes Joel White Veterans Health Isaac Kohane Chuck Fleischmann Senator Bill Hagerty Honored to have Public Led Online Training (PLOT ) and specifically our AI and personal science learning shared as an example in congress! srisatish Sara Riggare, PhD BMJ Patient Editor Emma Doble Sophie Staniszewska Christine Von Raesfeld Dave deBronkart Kirk Borne edX The Mental Elf Lex Fridman
Just released! First short film in a series documenting Christine's case. Christine Von Raesfeld introduces her case and Michael Snyder, PhD shares his vision for #personalizedmedicine through the lens of the FPOP study Stanford Medicine. Case Link: researchtothepeople.org/christine
youtube.com/watch?v=eB3La7…
Can we combine #research with #ClinicalCare ? I really hope so... 💜 RTTP @ Stanford
PETE @Snyder_Lab_SUb John of Tezos
Stanford Medicine
youtu.be/eB3La7dbuw0?si…
Creating a Safer Spaces For Patient Communities: during Cybersecurity Awareness Month we're turning fear into action.
New post via Tambre Leighn, MA, CPC she/her.
#BRCA #BCSM #BTSM #BeLikeLight
lightcollective.org/2023/10/25/cre…
Over the past few months we have been part of the patient-led collective with The Light Collective ☀️.
Join us for a Town Hall to discuss key questions about collective rights, health privacy &creating safer spaces for patient communities.
Register ⬇️
us02web.zoom.us/webinar/regist…
#BeLikeLight
We are delighted to partner with The Light Collective ☀️ (The Light Collective) to advance the rights, interests, and voices of patient communities in health technology. Please join us on Oct. 17 for a Town Hall.
I spent the summer participating in The Light Collective 2023 Cohort, learning more about #digitalprivacy . Join us on October 17th from 6:30 to 8 pm Eastern for a Town Hall. us02web.zoom.us/webinar/regist…
It's #CybersecurityAwarenessMonth .
Join us October 17th for a patient-led town hall about the safety, rights, and privacy of our online communities.
My organization, Well Beyond Ordinary, was honored to join the The Light Collective ☀️ 2023 Summer Cohort focused on understanding & protecting digital rights & data in online patient communities. To my fellow #advocacy org leaders/advocates, please join us 10/17, 3:30-5pm PST #BeLikeLight
💜⚽🇭🇹♊ Xtel Bond Carly by Nature Caring For Lupus #LupusChat @Lupus21Century Lupus Association Christine Von Raesfeld . Kaamilah Gilyard talked about the impact of fatigue, how debilitating it is, and how it affects our quality of life. Lisa shared a more accurate pain scale for those of us with lupus and how the ones currently used don’t reflect our lived experience. #Lupus21stCentury #LupusChat
